Patients prescribed cannabis for severe epilepsy will now have access to a UK supply of the Dutch oils.
Murray Gray and Ben Griffiths are raising funds to help other families.
The condition accounts for between one and two per cent of all childhood-onset epilepsies.
In a new series we share the stories of families whose lives have been impacted by medical cannabis.
The world-first trial has shown promise for the use of CBD gel in focal epilepsy
UK patients will be able to access the medical cannabis oil Celixir20 until the end of the year.
The world-leading paediatrician was interviewed by campaigner Hannah Deacon.
The MHRA has removed a compassionate licence for the import of Celixir20 - which many children currently rely on.
The product range sees a portion of the proceeds going to the Jorja Foundation.
Clover Carkeet's family have had to fight for her to maintain access to the treatment