Cannabis Health speaks to cannabis and CBD entrepreneur, Susanne (AKA SusieHemp), about her thirty-year relationship with the plant and why she is now giving small doses of CBD to her non-verbal autistic son.
Susanne, a mother-of-three from Cheshire, has used cannabis since the age of 20.
Due to a number of traumas in her life, including the tragic passing of her partner, the 50-year-old says she has depended “heavily” on both alcohol and cannabis at points in her life.
She was able to stop drinking several years ago and hasn’t touched alcohol since. She did, however, continue to consume cannabis. She didn’t know why, she says, but it was “working” for her.
Eighteen months ago, Susanne was diagnosed with autism and ADHD and it suddenly made sense to her why she was benefiting from cannabis.
Although scientists are still in the early stages of research, anecdotal evidence and early studies suggest that cannabinoids such as CBD could help alleviate symptoms related to autism spectrum disorder (ASD).
Research into cannabis and ADHD is equally patchy, however, many people with the condition report that cannabis helps manage symptoms such as agitation, irritability and lack of restraint.
A research paper from 2016, for example, analysed just under three hundred online forum threads. I found that 25 per cent of posts were from people reporting the therapeutic effects of cannabis. Only 8 percent of posts reported negative effects.
“I self-medicate,” Susanne says over Zoom.
“I don’t drink, I don’t smoke [cigarettes], I have an addictive personality, I am autistic and cannabis is what has helped me cope.”
She continues: “Cannabis lifts my mood instantly. I self-sabotage and that’s all part of autism. I look in the mirror and I would hate myself because of the traumas that I’ve been through. But after taking cannabis I can focus, it just changes how I think from negative to the other way.”
Having researched the potential benefits of CBD for ADHD and autism, Susanne wondered if it could help her son, Lucas.
Lucas, who is 12-years-old, lives with non-verbal autism. It is clear from talking to Susanne how much she loves her son, however as a single mum caring for a child with such a severe form of the condition, it has taken a toll on her wellbeing.
“I can’t speak to anyone when he’s around. I can’t have relationships with people, I’ve lost a lot of my social life because he consumes all of my time,” she says.
“He terrorises the house, he destroys everything to the point where I’m in tears, but he’s my son.”
During the Covid-19 crisis, Susanne describes being traumatised as the lack of respite from her care duties caused her mental health to plummet.
“My mental health has declined a lot because I’m in a very difficult situation, she says.
“A lot of people don’t have to cope with what I’ve had to deal with during Covid.”
Lucas has been prescribed ADHD medication on several occasions, but Susanne describes these periods as being “dreadful” for her son.
“They suppressed his appetite so much that I actually saw him wasting away in front of my eyes,” she says.
“I got to the point where I just couldn’t deal with it.
“It wasn’t doing him any good. I thought, ‘why am I giving him these tablets?’ I had to make the decision to stop it.”
She made the decision to bring Lucas off of his ADHD medication two months ago.
Having experienced for herself the benefits of cannabis for addressing mental health issues, autism and ADHD, Susanne decided to try Lucas on CBD.
He now takes just one drop of CBD oil a day in the form of a patch which he wears in bed.
Susanne says she saw a change in Lucas instantly after he started taking CBD.
“I had to look for alternatives to help us as a family, nobody else can,” she continues.
“I noticed a huge difference in his behaviour. I see it visually, he’s more relaxed and calm.
“With the patches, I have noticed that he wakes up in the morning and sits in bed for a while. Normally he would be out banging the doors, but now he’s lying in his bed happy.”
Things also changed for Lucas at school. Regular reports from his teachers show periods of time where he was disengaged and eating very little or nothing at all. This coincided with the periods that he was taking ADHD medications.
After he started taking CBD, his behaviour at school dramatically improved. She recalls receiving a recent report praising her son for being “lively as ever, engaged and eating us through the house.”
In her professional life, Susanne built a successful career in social care, working with children with attachment disorder, special needs and autism.
However, due to the lack of support from social services, Susanne was forced to leave her job five years ago to care for her son.
“I couldn’t put Lucas into [care] during the holidays, so I ended up having to come out of work and as a result, I struggled financially,” she adds.
Living on a carer’s allowance of £67 pounds per week, Susanne was unable to afford her car and struggled to keep up with mortgage payments.
“It was a nightmare,” she says.
“I was a lone carer trying to pay a mortgage.”
She also had to face the stigma of being a cannabis user on a day-to-day basis. On one occasion a neighbour reported Susanne to social services, leading to police and social workers “invading” her home and personal life.
“People are allowed to take antidepressants and that’s okay, but if somebody wants to take cannabis, that’s wrong.
“I was put in a position where I was discriminated against for using cannabis. It led me to think, ‘why am I being pushed into a corner like this? I’m doing nothing wrong here’,” she says.
In an effort to find other people like her, Susanne turned to social media where she posted about her experiences as a mum of a neurodiverse child and her passion for cannabis and its medicinal benefits.
She continues: “I just couldn’t find other people like me. People would look at me and judge me and think I’m a stoner.
“But I held down a job for 37/40 hours a week, I brought up three children on my own, I have my own home.
“Why are people judging me? Because I choose to smoke a plant?”
Having built a dedicated following on social media over the past three years, Susanne is now setting up an online platform to promote the medical benefits of cannabis.
The website, called Susie’sHemp, will publish interviews with cannabis advocates and promote both her own and other cannabis brands.
Lucas will also be the subject of a blog about autism, neurodiversity and the potential benefits of CBD for autism.
“I want it to be a diversity of interests for lots of different people, pulling together those that I’ve worked with for the last three years and have helped me.
“A lot of people don’t know about the different cannabinoids and the endocannabinoid system. I have to advocate for it and the website will be a platform for educating people,” she adds.
“It’s about getting the message out there to society and ultimately, the nub of it is education.”
ADHD Awareness Month: “There is more to ADHD than just annoying stereotypes”
To mark ADHD Awareness Month, we are focusing on patient’s stories of using cannabis to help their symptoms and manage their daily lives.
For ADHD awareness month, Cannabis Health meets patients who use cannabis to treat the symptoms of the condition.
In the first of our series on ADHD, we meet Jakob Fullagar who was diagnosed with the condition as a teenager. He treats his condition with a combination of prescription medication and cannabis.
What is ADHD?
Attention Deficit Hyperactivity Disorder (ADHD) is a neurological condition. It can affect people’s behaviour in that they can seem restless, they may have trouble concentrating and seem impulsive. While a lot of people are diagnosed at a young age, there are adults being diagnosed with the disorder.
It is thought that ADHD presents in three different ways:
Inattentive: An individual may struggle to organise or complete tasks, pay attention to details, follow instructions or conversations. It also causes a person to be easily distracted or to forget parts of their daily routine.
Hyperactive: A person with hyperactivity may fidget or move or talk a lot. They can struggle with sitting still for a long period of time due to feeling restless. They also struggle with impulsivity and may interrupt frequently, speak at inappropriate times or fail to wait for their turn. They may be more accident-prone.
Combination: They present symptoms of both hyperactivity and inattentiveness.
ADHD and Jakob
Jakob was diagnosed with ADHD as a teenager. As with a lot of ADHD children, he was labelled the naughty child and was placed into therapy. ADHD symptoms are often mistaken for emotional or disciplinary problems. It is estimated that ADHD children hear an average of 20,000 more negative messages than neurotypical children by the time they are 10-years-old.
In Jakob’s case, teachers also failed to recognise signs of the condition in his behaviour.
“I was a troublemaker as I caused problems and couldn’t concentrate. It took about seven to eight years of therapy before a psychiatrist said it actually might be ADHD, which made a lot more sense.
“I was straight away labelled as a naughty problem child and there was no point where a teacher turned around and said there may be something underlying there,” said Jakob.
As well as therapy, Jakob was placed on a low dose of Concerta. Concerta is a common ADHD medication containing methylphenidate similar to Ritalin. It is thought to improve focus in attentive presentations and also decrease risky or hyperactive behaviour.
He continued: “They just kept increasing it in three or four weekly increments. It tends to work fairly well. I can normally get about a year and a half before I feel I need an increase.”
Jakob had been consuming cannabis recreationally before he realised that it could be beneficial for his ADHD. It wasn’t until he received his diagnosis that he realised he had been subconsciously medicating with it.
“I started [using cannabis] before I actually knew I had ADHD, a friend recommended it,” he said.
“It wasn’t until I got diagnosed and talked about it with doctors that we realised I had been unknowingly self-medicating and self-managing. But it does work. I realised I could chill a little bit and I’m less all over the place.”
The studies of cannabis on ADHD are few but promising. A small Israeli study from 2020 on medical cannabis patients suggested that CBN may help to reduce symptoms. The study involved 59 patients who were asked to record their ADHD, sleep, anxiety patterns using questionnaires. Those on a higher dose of CBN recorded less medication use while those on the lower doses recorded less anxiety. CBN is a controlled substance in the UK as it is created when THC breaks down and becomes oxygenated.
Jakob finds that medical cannabis has pros and cons when it comes to symptom management.
“In terms of benefits, it’s absolutely taken me down a bit when it comes to energy levels. I am able to think things through after I’ve consumed. I’ll happily be able to sit and properly think out a process rather than just jumping straight in. I’ll take a step back.”
ADHD people can struggle with blurting things out, acting without thinking or failing to recognise risks as they act on impulse. This can have negative effects on their jobs, home lives and relationships. It can be difficult to take a step back to recognise the potential for danger, upset or difficulties.
He added: “I can process and choose an appropriate response. When it comes to being social, it’s much better to be able to navigate situations where I may upset someone by speaking before thinking.”
While ADHD diagnoses are on the rise, there is still a lot of confusion surrounding the condition. This can cause ADHD people to lose jobs, relationships and friendships. A survey from the US ADHD Awareness Coalition showed that more than half of those who participated said they had lost or changed a job because of their ADHD symptoms. A further 36 percent said they had four or more jobs in the past ten years with 6.5 percent saying they had more than 10.
Jakob is honest at work about his ADHD. Although he has just started working in a butchers, the smells, sights and textures don’t bother him. However, he admits that noise is a problem with distraction.
“I started working at a butchers about two months ago and it’s noticeable that I take longer to learn,” he said.
“At the minute, I’m constantly learning new things every day so I explained to everyone at work and said I have a learning difficulty so please be patient with me.
“They have to show me things a few times and supervise me while I try it myself. It takes all of that while I crack a process. Then there are the sensory processing issues that come with it. There is constantly fans, fridges and machinery going on and it’s a running joke that I can’t hear anything unless people shout.”
Sensory overload can happen when a person has input from their five senses that they can process. Multiple conversations, flashing lights, or a loud party can all produce the symptoms. It is common in ADHD, autism, fibromyalgia and PTSD.
ADHD and cannabis stigma
While Jakob is open at work about his diagnosis, he does get frustrated that people feel it’s about just being a stereotype. He believes that cannabis use and ADHD still carries a stigma.
“I think especially around ADHD, there is a stigma. You tell someone you have the condition and they think it’s about hyperactivity, being energetic and funny. There is a lot more to ADHD than just annoying stereotypes,” he said.
“When it comes to cannabis, I think a lot of opinions have changed over time so I don’t tend to say that I use it a lot of the time but the majority of people know that I do. I think the main reason people don’t like cannabis these days is because of the negative connotations around it.”
Jakob added: “I wish people knew we are all trying our best with the resources and strategies we have at that moment but we have to try that little bit harder, unfortunately.
“It’s not all balancing, happiness and excitement, as it can be really stressful.”
CBD brand created by a Welsh athlete releases report on potential health benefits of CBD
The Healthcare Technology Centre (HTC) partners with Welsh brand Hemp Heroes to discover the potential health benefits of CBD products.
The Healthcare Technology Centre (HTC) partners with Welsh brand Hemp Heros to discover the potential health benefits of CBD products.
The Welsh HTC led by Swansea University Medical School collaborated with Swansea and Ireland based company, Hemp Heros. Hemp Heros was co-founded by David Hartigan and martial arts athlete John Philips.
The report was the result of several months of research into the benefits of CBD- based products on a range of conditions. These included epilepsy, side effects of chemotherapy, multiple sclerosis (MS), stress and anxiety.
Speaking with Cannabis Health News, Hemp Heros co-founder David Hartigan explains how an interest in martial arts helped him to meet John and start the company.
Athletes and CBD
David said: “It’s a bit of an interesting story how myself and John met. My background is in business consultancy and I’ve always been into martial arts since I was a kid. John asked my brother who is a musician to do some walkout music for UFC. As John was only newly signed at that time, I wondered if he had anyone to help him with marketing and sponsors. I became John’s manager.”
He added: “I started looking at CBD companies because athletes were starting to use it. I thought there was a huge opportunity to get John sponsored by a company. We did get a few samples from different companies but the quality was hit or miss. Even the instructions when you were trying to read it could be confusing.”
John’s first experience with CBD was not actually on himself but his dog, Alfie. When he became ill, John began treating him with CBD after realising that Tramadol was not working. The vet had exhausted all options for treatment but CBD helped him to recover.
David said: “I have an uncle who is a powerlifter and he has a couple of Irish records. He has a number of injuries he started taking CBD for pain and inflammation. At one stage, he couldn’t even change the gear stick in his car but he has much better mobility and pain management now. So between my story, John’s and the lack of transparency in the industry in the market, we decided to try an investigation.”
David spent six to eight months researching the whole industry speaking to anyone he could about hemp or CBD. He also joined the board for the Irish Hemp Cooperative. They spent months researching everything before finding a supplier to get them started. The brand has now grown from three or four products to over twenty including a successful pet range.
Welsh university study
The brand partnered with Swansea University and are part of the accelerator programme there. They had planned to participate in studies on CBD but unfortunately, COVID hit just as they began to start the studies. The Welsh Accelerate programme aims to create lasting economic value by helping innovators in Wales to translate their ideas into solutions, enabling them to be adopted in health and care.
David explained: “Dr Daniel Rees, who is one of the researchers at Swansea University reached out to us. He had seen our products around the place and wanted to know if we would be interested to do some studies in the life sciences department.”
“The whole idea of the Accelerator programme is to identify potential services or products that can have a positive impact on people’s lives. It improves the lives of the end-user. Dan highlighted that very little research was done on CBD in this context. We are passionate about transparency so we really wanted to push the research. However just as we had hoped to start lab tests, COVID hit.”
The COVID situation didn’t force a complete shutdown but changed the direction of the study for the researchers. As the colleges were closed, there were no ways of getting anyone into a lab for testing so David and the team decided to go down the road of research producing a report on the effectiveness of CBD. The initial study paves the way for future research activities around four key pillars: pain, sleep, anxiety, and recovery.
Lab study to research reports
“What we did was change gears so instead of a lab-based study, we are going to do a more research-based one. We researched the case studies for CBD and hemp-based products along with the history behind them. We looked at different cannabinoids like CBD or CBDA, different terpenes and then unique extraction methods. We went into deep dives on what studies were there for cancer, sleep, inflammation, pain and took them as different pillars. This is what our report contains.”
He added: “We wanted to show some form of evidence for how CBD could possibly work for Parkinson’s by looking at the findings, how the studies are performed? What is the wider picture for sleep or inflammation? This could give us a foundation to build on.”
The next step
Hemp Heros started to submit an application called Smart Partnership to the University for the management side. This would allow them to secure funding to get an associate who would work between the Welsh brand and the university.
“It gives the company the tools and techniques to use these findings and apply them so you can continue your work. We have all of this anecdotal evidence on why people use our products but then the smart partnership would allow us to do a deeper dive and validate what our understandings are.”
He explained: “We have set out three pillars essentially. Sleep is one that we want to investigate and they have a sleep lab there. We want to start out with something quite simple like 20 participants with sleep issues and give them a protocol. They log everything then they take a set dose of our product for a week to see what the impact is. The next step would be to go into the sleep lab to actually monitor what someone’s sleep pattern is, how quickly it works and what the effects are.”
As well as the studies and research they have conducted, the brand is still planning to work with different athletes.
“Should athletes be using prescription pain medications to help with their pain to get through the day? They could have a more natural alternative with no side effects. Your body is already built for cannabinoids, not really for painkillers. That’s why a lot of people have issues with their kidneys when they are on painkillers for so long because they are trying to process everything.”
David is also involved in the advocacy side. He believes that Ireland needs to match the European level to make sure it isn’t left behind. He sits on the Irish Hemp Cooperative Board who are trying to change the laws.
“There are a couple of TDS (Ministers) who said that they would be interested in the sports angle. We aren’t looking for full-blown cannabis legal for everyone but we actually want to just look at hemp and the production because you can get a license but then technically what you grow is illegal. There is a massive gap in the law where the two laws don’t match and we don’t match at the European level. We need to make sure we are on par with our international counterparts.”
Emigration: Access is more than just medical access, it’s also about business
As Ireland continues to enforce prohibition, we meet Aoife McConnell who has moved her yoga business to Spain
In a new series, Cannabis Health News talks to people who have experienced emigration in search of safe, legal cannabis access.
Previous stories have focused on the difficulty of packing your entire life into boxes and emigrating with your family to a new country for access. But there is more to Irish prohibition than patients and access, it’s the loss of local businesses moving abroad.
In our fourth instalment, we speak to yoga expert, Aoife McConnell about moving her life and yoga business, Puff Puff Pose to Spain.
Aoife left Ireland during the summer of 2021 so has only recently arrived in Granada. She packed her entire life into boxes to get better access to cannabis and also, set up a yoga studio with a difference. She runs the popular, Puff Puff Pose, cannabis yoga studio which encourages practitioners to combine relaxing yoga with cannabis. The studio went online during the pandemic but she hopes to be able to establish a physical space now that she has left Ireland.
Safe, legal access abroad
Like most people in Ireland, her use started as recreational when she shared cannabis with friends. While she acknowledges the recreational side, she says she gets all the benefits of cannabis.
Prohibition in Ireland, and all over the world means that most people when they consume cannabis, often they have no idea what they are actually being given. Unlike legal states in America where someone can select what they need and know the THC or CBD content of a strain. Once Aoife became involved in the community, she realised how prohibition also stifles education about the plant.
Her use is mainly recreational however, while in Ireland she was forced to run her cannabis yoga business online or outdoors as it was illegal.
“In the last two or three years, I’ve become a lot more involved in the community of cannabis. Before then, I had no idea that were even strains of cannabis like Indica or Sativa. You were given what you were given. There is no source of understanding because there is no education around the whole thing. It could have been anything in a bag as we wouldn’t know the difference.”
She added: “When you realise they actually have completely different profiles or effects then that matters for someone who needs the plant for medicinal purposes. It matters how it’s grown, taken care of or what the product actually is. I think it was just teenage ignorance but I didn’t even think of the fact there was so much to it. You just take what you are given and like it.”
Finding a space
Prohibition meant her classes were unable to find a space despite their emphasis on wellness and relaxation. Aoife began to consider the longevity of her business especially as COVID rules relaxing meant people were starting to look for offline classes again. She realised it was time to leave Ireland.
“I’ve been doing my classes mostly online or outdoors because it’s unregulated or illegal. It’s hard to get into a space to facilitate those classes. I wondered where I could go in Europe that could facilitate those classes. The Netherlands are starting to pull back their laws a bit and get more strict, especially after COVID so you never know how they are going to react. Spain is moving in the opposite direction.”
The global cannabis industry is expected to reach $90.4 by 2026 thanks to the growing acceptance of cannabis consumption along with the medical side. This is everything from edibles to dispensaries to products. Ireland currently allows CBD and medical cannabis but the recreational side is still illegal. The current systems in place for medical cannabis are not functional with the MCAP program yet to even start despite being introduced in 2019.
It has been highlighted that the tax and profits raised by a legal recreational system could contribute to some of the financial problems experienced by the country. Legal systems in countries such as Atlanta Georgia, California and Massachusetts have proven to be successful. Sales in Massachusetts recently topped $2 billion which is almost double what the state reported in November 2020. Cannabis was legalised for adult use in late 2018.
Access to the Spanish model
While Spain has legalised the growth of up to two plants in your own home, there are still issues with the system. There have been reports of cannabis clubs, where it is legal to consume cannabis, being potentially closed. But for the meantime, a patient must sign to say they are addicted to cannabis and a resident before being allowed entry to one of the clubs.
“There are a lot of regulations around the clubs. You have to sign an affidavit to say you are addicted to cannabis and seeking out the club to facilitate your addiction. You have to say the club is not enticing you or advertising in any way. Most of them look like a door and you wouldn’t even know apart from the smell.”
Once you are inside, there is a loophole that allows this club to operate as cannabis is a ‘hobby.’ The illegal part is the buying and selling of the cannabis. I’m not sure where the government thinks they are getting this cannabis from. So I started to think that Spain was where I wanted to be.”
Deciding where to go in Spain was easy. Aoife had a friend based in Granada in the south so she chose to go there. She visited during the summer and fell in love with the architecture, history and feel of the city. She felt it was the perfect place to move the business. Aoife also teaches English online so her day job was perfectly suited to moving abroad.
“I quit my job and went on a tour of Europe. I’m still settling in here and learning the siesta way of life. But so far so good. There are a lot of experts here and everyone understands where I am coming from so they are very helpful.
Aoife highlights how the leap into the unknown is often the hardest part of emigration. She feels she has never been this self-sufficient. Her day starts with tutoring online to pay bills but she will be opening the yoga business soon. In an unusual move, Aoife’s previous experience was as an airline hostess.
“It’s exciting to be stepping out and owning my own business. I’m still terrified about it but also really excited. I used to work for an international airline, Emirates when I lived in Dubai. I travelled everywhere. I was always looking for a studio or thinking about building my own.”
“I struggled to make friends in yoga class especially when moving to a new city. In my classes, at the beginning, we always consume together then chat. I’ll always bring orange juice, kombucha and biscuits. We sit around for as long as people want. It’s a real community-building atmosphere.”
Time to leave
Aoife is proud to be Irish but explains the problems with the country mean she is not thinking about staying.
“I love the fact I’m Irish and that part of my personality. I would love for my kids to have that much Irish in them. I couldn’t afford to live there as we are being priced out of the country. I couldn’t afford the type of lifestyle I would like to have. It’s ridiculous. The fact that we didn’t have a green passport for so long. We’re the only country in the EU who weren’t ready when that was rolled out speaks volumes.”
Introducing our new B2B title
- My endometriosis was misdiagnosed as an eating disorder
- New research could have major implications for global drug-driving laws
- Find your balance with premium, vegan and cruelty-free CBD patches
- Long Covid: Experts explore the role of cannabinoids in treatment
- David Beckham-backed CBG skincare line launches new products
- Chronic pain and medical cannabis – “Without it my life stops”
News1 year ago
Community extends support to cannabis icon Rick Simpson
Case Studies2 years ago
CBD oil and fibromyalgia – a case study
News1 year ago
NHS lines up cannabis medicine manufacturing
News1 year ago
Cancer survivor claims cannabis oil helped her beat brain tumour
News11 months ago
UK grants second licence to grow high-THC medical cannabis
Insight1 year ago
I’ve gone from a wheelchair to walking thanks to cannabis
News1 year ago
Living with chronic fatigue – my CBD story
Feature1 year ago
Medical cannabis could help long-term effects of COVID-19, says David Nutt