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‘Medical cannabis was my daughter’s last hope – I wouldn’t dream of taking it away from her now’

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Tannie and her daughter Indie-Rose

Cannabis medicine was Tannine’s last hope when she boarded a plane to the Netherlands with her severely epileptic daughter. But now Brexit regulations threaten to take that away, she tells Sarah Sinclair. 

Indie-Rose, now six, had her first seizure in her high chair at four months old.

“I’d never seen anything like it in my life. I was petrified I didn’t know what to do,” says Indie’s mum Tannine Montgomery.

Doctors reassured Tannine it was just a febrile convulsion, a fit that can happen in babies as a result of a fever or spike in temperature. Although she was shaken by it, she wasn’t overly concerned.

“I was really scared about what I had seen, but we took her home and I thought to myself she’s going to be fine, it’s just one of those things,” she says.

“But Indie didn’t stop seizing. The seizures progressed quickly and she was soon having a lot of them. We were constantly calling an ambulance.”

Even when doctors told Tannine that they thought her daughter had epilepsy, she was still hopeful that she would lead a normal life. 

“I knew nothing about epilepsy at the time, I’d never seen anyone have an epileptic seizure, but I thought we would get some medicine and Indie would be able to live a normal life. I was quite hopeful that’s what would happen,” she admits.

Indie was prescribed various antiepileptic drugs, none of which managed to keep her seizures under control, and underwent a number of tests, from MRI scans to lumbar punctures while still just a few months old.

Her doctors eventually discovered a gene mutation related to Dravet syndrome, a rare but severe form of epilepsy, which along with uncontrollable seizures causes a number issues such as cognitive decline, hypermobility and problems with movement and walking.

By the age of two Indie had begun to show signs of Dravet syndrome, her development had halted and she lost her ability to talk, but it was the contrast seizures which were leaving her most at risk.

“By the time Indie was three, we were eight antiepileptic drugs down and still nothing stopped her seizures,” says Tannine.

“We were still calling ambulances constantly and I just couldn’t see that for her for the rest of her life.”

For the next year Tannine dedicated any spare time that she could to researching medical cannabis. 

“I’d heard it could help but if I was going to give it to my daughter I wanted to make sure I was giving her something safe and I wanted to make sure that I was being legal – I didn’t want to risk my daughter being taken off me,” she says.

Tannine eventually met the founders of a UK CBD company, who showed her around the facility, explained the extraction process and gave her some oil to try with Indie.

“For three weeks it sat in my cupboard, because I was too scared to use it,” she remembers.

“Finally, Indie had this awful night with so many seizures. I opened the cupboard to get her normal medication and saw the CBD oil. I thought, ‘I’ve got nothing to lose’.”

Indie-Rose

Ten days later Indie ran down the garden for the first time. 

“It was amazing, we’d never seen her run,” says Tannine.

“Indie’s dad and I, just looked at each other and realised this stuff was actually helping her.

“From that point on we started trying to get her a prescription, so we had guidance from doctors and could make sure we were giving her a therapeutic dose.”

With cannabis still illegal in the UK, even for medical purposes, Tannine contacted the Erasmus Hospital in Rotterdam, where a paediatrician agreed to prescribe Indie the whole plant cannabis oil Bedrolite.

With Indie’s condition at its worst Tannine left her eleven-month-old son with his grandmother and travelled to the Netherlands in a bid to save her daughter.

“She was having seizures on the aeroplane. I was petrified, but I felt like it was my last hope,” she says.

“As much as people could say it was unsafe to take her, Indie had seizures every day. I would never have got her out of the country and I needed to get access to this treatment.”

The next day Tannine took Indie to her appointment with the pediatric neurologist and collected her prescription from a local pharmacy.

“It was just a regular pharmacy selling paracetamol and other medicines, it was amazing that we could just go to the pharmacy and collect it,” she adds.

After one day on the medicine Indie slept through the night. After four days she had had no seizures at all. When Tannine’s partner arrived to join them with their son, Indie played with her little brother for the first time. 

“I remember him standing at the doorway of this Airbnb and she ran up to him to tickle him. Up until then it was like she hadn’t even known he existed,” says Tannine.

“We could see straight away how this was helping her interact and function so much better.” 

The family put their lives on hold and spent three months in the Netherlands, unable to return to the UK with Indie’s medicine. Tannine describes the experience as like “living in lockdown”.

“We were there for just over three months, but it felt like forever,” she says. 

“It was traumatic, it certainly wasn’t a holiday. We didn’t have money to spend on sightseeing, it was all for Indie’s medicine and the whole time I was fundraising to be able to afford to keep her on it, because it’s not cheap.”

Eventually Indie was granted a licence to import Bedrolite to the UK through a private prescription and in November 2018 the law changed to legalise medical cannabis.

But Tannine continued to campaign for NHS access, with no option but to rely on donations for Indie, having spent over £30,000 on her prescription fees to date.

It was this that drove her to launch her own CBD company last year to help fund Indie’s medicine, as well as supporting others in similar circumstances. 

“Unfortunately, when a bottle of Bedrolite oil is £160 for 10ml and your child’s using two of them a week, that’s not attainable for anyone who’s just holding down a normal job,” she says.

“I didn’t feel like I was getting anywhere with the government and I didn’t want to have to rely on fundraising forever.”

Tannine saved up out of her benefits and began making her own products, using a 10 percent cannabis oil, similar to Bedrolite, but with lower levels of THC and legal in the UK.

“I had a lot of good feedback and that’s when I decided that this is something I could do to provide Indie with what she needs and help people at the same time,” she says.

“I wanted to create an authentic company built on love for my child and my desire to help other people who have to suffer the way she does. 

“This isn’t prescription medication, but each person is so individual in what works for them when it comes to cannabis, it’s always worth trying something. When I get a text message from a mother who says her daughter stood up for the first time, it makes my day. 

“There isn’t anything in this world that can make me feel better than improving a child’s life.”

Indie hasn’t been hospitalised for three years since she began taking the Bedrolite, she hasn’t needed any rescue medication or pharmaceuticals and last year her attendance in school was 96 percent. 

However Brexit has left Indie and dozens of other patients without access to the life-saving medication. 

The family were given just two weeks notice after the Department of Health and Social Care (DHSC) sent a letter to importers, clinics and patient groups, stating that prescriptions issued in the UK ‘can no longer be lawfully dispensed in an EU Member State’ from 1 January, 2021.

Those prescribed Bedrocan oils through the Transvaal pharmacy based in the Netherlands, have been advised to find “alternatives”. But as many experts have warned, switching these children’s medications could be life-threatening. 

Plant and cannabis expert Dr Callie Seaman told Cannabis Health that with over 565 different secondary metabolites in cannabis plants, each batch is subtly different, let alone each product or supplier. And consistency is vital in the treatment of severe epilepsy. 

“For patients taking medical cannabis for palliative care and other diseases, a switch in oil is not the end of the world, but what’s needed with epilepsy is consistency,” she explained.

“Any neurologist will tell you that when you find something which works, you have to stick with it. As soon as you start changing things that’s when the issues arise, and any seizure comes with the risk of death.”

Indie still lives with disabilities as a result of her condition, but the seizures she has are much less severe. 

The fact her medication is at risk is an added worry for Tannine, who says if the legislation surrounding the import of cannabis medicines from the Netherlands doesn’t change they fear her condition could worsen. 

“She’s doing so much better than she was,” she adds.

“I couldn’t dream of taking it away from her now.”

 

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“I could be a better father with cannabis as my medicine”

Dad-to-be can only afford to fund his prescription for two more months.

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Leigh Hardwick lives with chronic pain and mental health issues.

Dad-to-be, Leigh Hardwick believes his medical cannabis prescription will allow him to be a better father when the time comes, but unable to work to sustain the crippling costs, he faces a future reliant on opioids.

Fifteen years ago, Leigh Hardwick, was the victim of a violent attack.

In the early hours of the morning at the front door of his flat, he was hit on the head 20 to 30 times with a brick at the hands of a stranger. 

At the hospital he was cleaned up and X-Rayed, but was never given a brain scan or offered any psychological support. He was sent home a few hours later with four stitches and a prescription for a packet of painkillers.

No one was ever changed with the attack, but the incident changed the course of Leigh’s life.

He experienced horrendous night terrors and turned to drink and drugs to self-medicate for symptoms which he now knows to be a result of PTSD.

The “impulsive behaviour” and a “lack of self control” he describes at the time, led to him getting in trouble with the police and serving two years in prison for drug-related offences.

“The mental health issues all started at the attack. The anxiety, depression, PTSD, addiction and recreational drug use was accelerated massively by my self-medicating to cope with the PTSD symptoms that I didn’t understand at the time,” says Leigh, now 36. 

After experiencing pain since birth, Leigh had been diagnosed with idiopathic scoliosis at the age of 23. He used his time in prison to focus on his health, exercising and attending counselling where he was then diagnosed with PTSD.

But after injuring his back through training he was prescribed codeine, which he pinpoints as the beginning of his problem with pharmaceuticals. 

Upon release I worked hard but I had struggled mentally to adjust,” he recalls.

“After losing some very close relatives I had trouble sleeping again and started to abuse sleeping tablets and benzodiazepines for anxiety.

“My work was being affected and I had a six month absence due to panic attacks and stress, including suicidal thoughts. I was put onto anti-depressants, but nothing improved.”

Leigh sought help through his GP, but despite his scoliosis, doctors decided to detox him from all of his pain medication.

“Because of the addiction and part-substance dependence on the diazepam, it was treated as though every substance I was using I was addicted to unnecessarily. When actually, some of them were needed,” he says.

Leigh was prescribed the opioid substitute, Buprenorphine, leaving him with no pain relief.

Leigh Hardwick has had a legal prescription since January.

“It was horrendous, I was in agony, but received no counselling or support and was continually disbelieved about the pain I was in,” he says.

“I was treated like an addict when really I needed a pain clinic.

“It’s very difficult once you are involved in a drug detox service you’re then tarred with that brush.”

Due to his pain, Leigh was unable to work and over the next few years his mental and physical health deteriorated.

After two years trying to get a referral he detoxed himself from Buprenorphine and a few months later re-presented to the doctor, clean but suffering debilitating pain.

He was referred to rheumatology for tests and a neurophysiological scan and his pain was treated with a cocktail of drugs including, dihydracodeine, gabbapentin and diazepam.

“I was back in front of him in agony, needing scans and painkillers, and so I started back on the carousel,” says Leigh.

“All together, I was prescribed 22 tablets per day at one time and I stuck to my prescriptions but I felt like a zombie. My symptoms were barely under control and I was unable to attend work most of the time. 

“Over the four years I was taking these medications I lost touch with myself.

“The combination left me ‘existing’ but with no quality of life. I’d decided the world was better off without me and had zero interest in living.”

Then last year, Leigh’s wife and partner of 11 years, shocked him with the news that she was expecting their first child. 

He aimed to get completely clean, using Rick Simpson Oil and THC flower illicitly to cope with the withdrawal symptoms, while he reduced his other medication. 

Cannabis helps with pain, but also with sleep, the muscle twitching and the IBS symptoms. It definitely helped me through the process,” he admits.

“I had no idea medical cannabis was legal at that point, until someone mentioned Project Twenty21 in a group chat, but I put off looking into it for fear of disappointment.”

In January of this year, Leigh had his first consultation with a leading pain specialist at The Medical Cannabis Clinics.

“In my initial consultation I was understood, I was listened to and treated like an adult. It was a really refreshing experience,” he says.

“It is not a cure. I’m not jumping around, by any means. I do still suffer pain most days and struggle with mobility, but it’s more about the lack of side effects from the other drugs that I was taking.”

But unable to work and relying on disability benefits, funding the monthly £680 private prescription long-term, is unsustainable for Leigh, even with the support of Project Twenty21.

His wife currently supports him with her income, but he only has enough savings for around two more months and has already had to go back on some of his prescription drugs to help reduce the costs.

Leigh also has to fund private mental health support and counselling, as he is no longer able to access NHS services due to his previous drug use.

“It’s just a matter of time until we’re unable to afford it anymore,” he says.

“If money wasn’t an issue and I could access as much cannabis as I need for my conditions, I believe I could probably function as a normal human being in society, albeit with pain issues.

“I could probably go back to work, if it was a part time job where I sitting down.”

He fears that if he has to go back to relying solely on opioids and depressants, he won’t be able to be the father he hopes to be to his soon-to-be-born daughter.

“My main focus and priority now is being the best father that I can be,” says Leigh.

“The best way that I can do that is with cannabis as my medicine. It’s definitely the way I am most in charge of my thoughts and the most competent.

“Previously, I was totally disinterested in life. I had a consistent mantra in my mind, that was, if anything goes wrong, at least I can kill myself. I was on the verge of that for years, but that option is gone now, because I’ve got a child and that’s also not what I want for myself or for my family.”

He adds: “The worry is, if I reduce the cannabis and take on other medications I may become disconnected again and that will emotionally close me off.”

During lockdown this year, Leigh connected with other medical cannabis patients and helped set up an online support group. 

Along with his co-founders, Sylv, Ryan Holmwood  and Dominic Stenning, he guides others through the process of approaching healthcare professionals and accessing a prescription, as well as campaigning for ‘fair access’ to cannabis-based medicines on the NHS and to change societal and cultural views.

But supporting other patients has had benefits for Leigh too, giving him something positive to focus on. 

“I’ve contributed to negativity to society and I suppose this is my way of trying to make reparations for that, to try and swing the karma balance back a bit,” he adds.

“I’m really thankful to everyone we’ve supported, for their feedback and ongoing help that’s given me so much over the last four months. 

“I don’t think there’s anything better you could do, than to help disabled people live a better life.”

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Jane West – The mum who was fired for using cannabis built her own empire

The entrepreneur and founder of Women Grow is determined to change the narrative around cannabis

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Jane West was fired from her job in 2014 after hosting cannabis-friendly events

Made famous by her high-end cannabis-friendly events, Jane West was fired from her corporate job for consuming on TV. Now at the helm of her own cannabis empire, she is determined to change the industry narrative.

Jane West’s ideal Friday night is putting on a cocktail dress, going to a fancy restaurant or event and “getting high”.

“I’m an avid cannabis consumer,” she tells me from her home in Colorado, where cannabis has been legal for recreational use since 2012.

“I see it as part of a wellness routine.

“If I’m going to get a babysitter and go out on a Friday night and spend $100 at an event, I want to get dressed up and be fancy and also be high.”

In 2014, alongside her corporate job, West launched her own cannabis-friendly events, where adults could get together to consume socially.

The events took place in private art galleries, with live music and even hosted a fundraiser for the Colorado Symphony Orchestra held at the famed Red Rocks amphitheatre with 5,000 guests.

They also attracted international media coverage. A reporter from the UK Telegraph attended the first one, with the Daily Mail later describing them as ‘sophisticated cannabis soirees’ with ‘foodies for munchies’. 

At her second event, a clip of West unashamedly telling the camera; ‘I’m a mum and I use marijuana, and that’s okay’ was so newsworthy it made the five o’clock evening news. 

West was fired from her job when her bosses saw the clip.

“I’ve never been fired from everything in my life and I have had a job since I turned 15, so to have a career where you have a salary end like that was dramatic,” she recalls.

“I definitely did not intend that to happen, at the time was that people thought I was trying to get fired.

“The fact that the woman hosting the weed events got fired from her job became a whole new story.”

West founded networking group Women Grow to promote diversity in the industry

Even though cannabis is legal and easily accessible for many in Colorado, residents are not permitted to consume it publicly.

As West puts it: “Even though everyone has access to it, there’s very few places where you can go to consume it.”

Eventually one of West’s events was raided by police and she received criminal charges.

“They had me on probation and made it clear that if I did anything else they would put me straight in jail, so I had to figure out what I was going to do,” she says.

“My event company wasn’t going to work until we passed social legalisation.”

Even now, six years on there is little sign of this, with several bills which would permit social consumption businesses failing to get through in recent years. 

West is hopeful though, that the need to restart the economy and hospitality sectors following the coronavirus pandemic may spur things on.

“Social use is going to be the last domino,” she says. 

“I hope that this might come from the pandemic, in the next year or two as these, as we start to get back to normalcy and we have all these empty storefronts and restaurants and hotels.”

West adds: “One of the biggest issues, is that we don’t see people consuming cannabis like you see people drinking alcohol. 

“A significant element of cannabis culture is those scenes of a dude sitting on a couch with a bong at his crotch, but that doesn’t reflect my cannabis experience. I want images of a woman, dressed up with a joint in a high-end setting, then people will start to think differently.

“With social use, that’s when people will actually be able to see people using cannabis and realise that it’s for everyone.”

Edible Events was over – at least for the time being – but West’s cannabis career was just starting to take seed.

“Women from all over the world were reaching out to me and asking how to get into the cannabis industry,” she says.

“I was like, ‘I don’t have a job anymore, I don’t grow weed and the events that I planned are completely illegal, I am not the person you should be asking’ – but no one else was paying attention to women.

“All of the legalisation groups and companies launching were led by men – mainly generationally wealthy white men, who had the money to get started.”

Under her new alias – Jane West – she founded the networking organisation Women Grow, to connect women with others in the industry and with the premise to create more female-owned cannabis companies.

“I realised that women need to change the way they think about cannabis, or uneducated stereotypes about it would to prevent them from entering the industry at exactly the time they should,” she says.

Over a quarter million people have attended Women Grow’s networking events and national conferences in Colorado since its inception, with members launching their own branches in 40 cities across the US.

By 2016, West was ready to dabble in cannabis entrepreneurialism herself, and having recruited the next generation of Women Grow leaders, she divested the vast majority of her interest in the company and it is now majority black female-owned, she tells me.

After testing the water with a limited edition range of glassware and smoking paraphernalia, West went on to raise $1.3 million in seed funding from 22 accredited investors, 80 percent of which is held by women and people of colour. 

West recently completed another successful seed funding round

She spent the money developing her signature travel collection – a range of sleek, stylish and discreet vaporisers and pipes and now partners with minority and family-owned businesses across the US to supply Jane West-branded CBD products and whole-plant cannabis, which comes in two simple formulations; day and night. 

“Cannabis is confusing and intimidating, which is unfortunate because it is a safer alternative to prescription medications and alcohol, which are the primary substances that people are consuming. We want to take that confusion away.” West explains.

“Our customers know that I vet and find great growers, so it makes them more confident and it simplifies the buying process.”

In 2020, the number of cannabis retailers carrying the Jane West brand tripled from the previous year and it has now secured licensed cannabis partners in 13 US states, and Canada.

West doubled her revenues last year and recently closed another round of seed funding, with thousands of investors from 42 countries.

But despite its success on paper, she insists the company is still in “start-up mode” – and that she really “didn’t know what she was doing”.

“I did my best to leverage the fact that my name was out there, but I definitely wasn’t trying to front anything,” she says.

“I was like ‘I think we should have this networking group, and I don’t know what I’m doing but I think we should make bongs.’

“The more candid you are about what you don’t know, the more transparent conversations end up being and the further you get. I think that’s important in cannabis now more than ever, we need more transparency.”

This might not have been the plan, but having built her own cannabis empire – and a space which empowers women to do the same – I can’t imagine West would change anything now?

“I don’t have any regrets… I helped women make the critical connections they needed to manage an extremely hostile unwelcoming business environment, but I wish I could point to more female-owned businesses and say that’s because of Women Grow,” she admits.

“In Illinois only 21 licenses to grow have been issued, in Colorado there’s 2,500. In most of the states in the US, women and minorities were not granted licences – why that occurred is up for question.”

West adds: “I wish I’d spoken up earlier about the inequality.

“The most important reason to keep talking about being a woman or a minority is to keep pointing out that you’re the only person in the room. This [industry] just started, it shouldn’t be so inequitable already.”

 

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“It was like a miracle” – MS sufferer who supplied hundreds of patients with medical cannabis

Diagnosed with MS aged 21, Lezley Gibson supplied medical cannabis to patients across the country.

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Lezley Gibson (right) was diagnosed with MS at the age of 21

Over the past 25 years, Lezley and Mark Gibson have supplied £500,000 worth of cannabis-infused chocolate free of charge to MS patients across the country. Having faced prosecution five times, they are now both benefitting from a legal medical cannabis prescription. 

In 1985, at the age of 21, Lezley Gibson was diagnosed with multiple sclerosis.

Her doctors told her that within five years she would be incontinent and in a wheelchair. Thirty six years later, Lezley is neither – and she believes she has cannabis to thank.

“Everything that I’d ever seen about MS was very gloomy”, Lezley said.

“I was destroyed when I was told about the diagnosis.”

At the time, Lezley was in the midst of starting a business, having just opened her own hair salon.

“I had big plans for myself, but then halfway through opening my own salon, I was diagnosed with MS and that was my career over. It’s very difficult to cut hair when you’re shaky and you can’t walk properly,” she said.

“It was a very hard time for me; I found it very difficult. I was your typical 21-year-old. I was into clothes and makeup, I was a hairdresser and I loved people and dancing. But that was the end of that.”

 

A year after her diagnosis, Lezley met her now-husband, Mark. As a recreational user at the time, Mark introduced Lezley to cannabis and she said the effect it had on her condition was “miraculous”.

“I had never really come across cannabis before, but I noticed when I was with Mark and his friends that I felt an awful lot better, not just because of the relationship but because I was consuming cannabis,” Lezley recalled.

Lezley and Mark Gibson

Prior to taking cannabis, Lezley’s body felt tense and was prone to spasms.

“I never felt very comfortable,” she said.

“My body never really worked properly. But I noticed with the cannabis in my system, my body was calmer, my spasms disappeared and all the other little things faded into insignificance.”

The pain and nausea that she experienced on a daily basis began to fade as well. Meanwhile, her eyesight and speech, which she had begun to lose over the past few years, improved.

At the time, in the mid-1980s there was very little information about cannabis as a therapeutic drug, but Lezley was finding that consuming the plant was having a much more positive effect on her condition than the medications prescribed by her doctors.

“I’m not a fan of drugs of any description… they’re far too strong,” Lezley said.

“They put me on steroids, which made me double in weight and grow a beard, which was fantastic at 21. After that, it absolutely terrified me.

“With everything they offered me, they said ‘it might make you worse’, which wasn’t very appealing. But with cannabis, there weren’t any of the side effects. It was nothing like what the doctors were offering me.”

She added: “The only side effect I found with cannabis was it made me feel quite nice and there are not many things that do. I have MS so I don’t get to feel nice very often.”

As Lezley continued to benefit from taking cannabis, she decided not to keep it to herself. She wanted to make other people with MS aware of its benefits and how it had improved her condition.

Lezley (right) produced cannabis-infused chocolate for other MS patients

In 1995, she was a guest on the popular BBC One chat show, Kilroy. On the show, she met other people like her, including Claire Hodges, an influential activist who campaigned for the therapeutic benefits of cannabis and later played an important role in GW Pharmaceuticals earning its licence to produce Sativex.

Lezley became good friends with Hodges and soon found herself in a circle of fellow MS-sufferers campaigning for the benefits of cannabis. One of these campaigners was Elizabeth Ivol, who was producing cannabis-infused chocolate from her home in Orkney.

Unfortunately, Ivol was raided by the police and soon lost the ability to continue producing the chocolate as her condition worsened. She asked Lezley and her husband, Mark to take over the operation.

The couple found themselves making cannabis chocolate for hundreds of people with MS. The very real possibility of them being raided by the police rarely left their mind, but they were determined to continue helping patients.

“There was success with the people who used our chocolate and this is why we kept going,” Lezley said.

“In one instance a lady from a nearby village wrote me a letter. She’d been bedridden for four years so her husband came knocking on my door to get some chocolate. Within a week of her using the chocolate, she was taking her grandchildren to the park and sewing curtains. It was like a miracle.”

Over a two year period, Mark and Lezley supplied 33,000 bars of THC chocolate, free of charge to MS patients across the country.

Lezley and Mark continued the operation for over two decades

But such a large operation was difficult to conceal from the local police and the couple were raided three times between 1995 and 2003.

“I have a daughter and my poor daughter has witnessed all of this since it began,” Lezley said.

“It was a difficult time. When I did the school run you had all the women standing in little groups and it was definitely them and me. A lot of people thought I was just a ‘druggie’ which I can assure you I am not.

She added: “Even members of my own family had an opinion, but I had to do what I had to do – I had to be well and that was how I was well. If people didn’t believe me then that was their fault, not mine.”

In 2003, a police raid resulted in them being charged with conspiracy to supply £500,000 worth of the illicit chocolate.

It wasn’t their first run-in with the law. In 1999, Lezley had been charged with possession for carrying a small amount of cannabis flower. She successfully pleaded not guilty, arguing that using cannabis prevented an MS attack, with the jury accepting her argument.

This time, they weren’t so lucky.

The judge agreed that what they were running was an ‘altruistic enterprise’ with little to no money made during their time supplying cannabis to MS patients.

But unfortunately, the jury found them guilty and the couple along with a collaborator, Marcus Davies, were sentenced to 18 months in prison which was then suspended for two years due to Lezley’s condition and Mark’s responsibility as her primary carer.

Lezley and Mark kept their heads down for the next 15 years, but after the police were informed of the couple’s cannabis consumption, their home was raided once more in 2019.

Lezley and Mark (left) were found not guilty in 2020.

The police only found three bars of cannabis chocolate for Lezley’s own personal use, but a discovery of Mark’s modest-sized grow room set off another court case.

In between being charged and appearing in court, Lezley became one of the first patients in the UK to receive a medical cannabis prescription, which Mark believes prompted the Crown Prosecution Service (CPS) to rethink their position.

Although Lezley and Mark both freely admitted possession and production of cannabis, the CPS decided not to offer any evidence and the couple were found not guilty in January 2020, a year after being arrested.

“To be found not guilty when you’re not denying any of the facts and you clearly are guilty in the eyes of the law, that’s a real seismic shift,” Mark added.

“We were both prepared to go to court, run it to the jury and stick to our principles and our staunch refusal to plead guilty. However tiring it is, sometimes you just have to stick to your guns and say you’re not going to bend.

“We did absolutely nothing wrong but treat our illnesses with an herbal remedy.”

Mark and Lezley both have a legal medical prescription now and although they believe things are headed in the right direction, they remain critical of a system that shuts many people out.

Mark continued: “What we’ve got now is what I would call economic legislation. Those who can afford it can have it, and those that can’t afford it can’t have it and that’s wrong.

“How is it fair to prosecute somebody around the corner who is medicating for an ailment and bought the cannabis illegally because they can’t afford the consultancy fee and prescription?”

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